Another year over.

And for me, its been a very eventful one, where I have encountered many new experiences for the very first time. From journeying down a tube for an MRI scan, to having a major operation in a hospital I have never been in before, enduring chemotherapy and all that entails including making some new friends, ending with stabbing myself in the stomach daily with a needle following a blood clot and its been a very interesting year to say the least, and one that, although it had its moments, you will all understand I am sure when I say that I do not wish to repeat any of it again. During that time, my daughter has proved how resilient she really is, and also how she continues to demonstrate her ability to adapt to any situation no matter what.

I simply wouldn’t have coped with any of it without her by my side. She’s been my full time nurse, my companion, she’s been there to cheer me up during the darkest hours, and been strong enough to take the brunt of my moods when I’ve been down. Now I know why she was sent to me those thirty odd years ago when I asked him up there why, why me? when she was born, probably in exactly the same way as any parent does when the child they were expecting to receive hasn’t materialised, and they have received an entirely different child in its place.

And she is in her element when the tide is turned, when its her looking after me, calling the shots, being in charge and she is brilliant at it. I have always stated that had she not had learning difficulties or been saddled with the label ‘Down’s Syndrome’ that she would have gone into some kind of ‘caring’ role, as a nurse or some caring profession. Its in her nature to be caring, and she went above and beyond what many people  would have done whilst I was ill. She was ‘on duty’ twenty four seven at my side, and during that awful week that followed my return home after my operation, when (as it turned out) I had a septic infection, she became who she really is, a nurse nightingale, oblivious to her own needs and focusing only on mine.

TG

P.S  I’m sorry that I haven’t been blogging of late, but intend to return to my usual favourite pastime in the new year, when hopefully K and I can resume our gallivanting around the Yorkshire countryside on numerous adventures and quests, so back to normal! (I hope!)

On the Mend.

For those of you who have been wondering why I have not been blogging of late, I had to go into Hospital for a major operation on the 31st January.  I expected to be on the mend after being discharged home on the 7th February, but unfortunately on my return home, I took a turn for the worse, and was quite ill for well over a week or so.  Quite how I would have coped without my lovely daughter I dread to think. She has been nursing me 24/7 throughout the whole time, sleeping next to me to be instantly on call with cleaning me up and I cannot praise her enough.

Her dedication and patience has been extraordinary, and has gone far beyond what anyone could expect a daughter to do when her mother is ill. When she was born, I can remember asking ( in my head) “ Why?” I now know the answer.  To give me 150% and more of her caring, her love and infinite patience. 

Of course, K being K she wants a new ‘Jaws’ t-shirt to add to her vast collection and also a CD and she will get them and more.

I am now at last on the mend and gaining strength day by day. The operation was a complete success but I will need to have quite a few Chemotherapy sessions just to ‘zap’ those strays and make sure its all eradicated.

Leeds City lit up at night

The panoramic photo enclosed in this post were taken from our dining area on the ward at night when as usual, TG couldn’t sleep.

TG

Ha ha Halloween!

It’s that time of year again. How soon it all seems to come round!  When a young (well thirtyish) Down’s Syndrome woman’s thoughts turn to creating as much merriment and laughter as she can possibly muster up as she samples the many wares on offer in her local Tesco’s. Not concerned with the strange looks given by passing shoppers or the screams of fright from terrified toddlers, she continues every year, year in and year out, churning out the  same old jokes as her mother sighs and thinks to herself, Oh no! It’s not that time of year again is it!

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Jabbing Time.

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On Friday, we went down to the doctors for our annual combined flu and swine flu jab.  In hindsight, maybe I should have mentioned to the nurse who administered my jab that I was feeling ‘under the weather’ with a sore throat.  As usual I kept Mum.  K had hers done first.  She always gets in a bit of a state over it and then afterwards always says “Oh that was nothing!”  Every year.  The nurses always find her hilarious.  Later that day, I began to feel ‘off’.  One minute I felt cold, the next minute hot.

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I’m under the Weather and under the thumb!

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Whiling away the time all day yesterday waiting for a parcel to be delivered, by the time that K arrived home from Day Care the courier had still not arrived.  I announced to K that we would have to forgo our usual trip to Sainsbury’s for our Tuesday food supply stock up.  She wasn’t going to be deterred  so easily however.

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